Thank you for all your support!
Our son Caden is a very active 5 year old who lives with moderate hemophilia A. Hemophilia A is a bleeding disorder where the blood clotting factor VIII is decreased or missing. This causes bleeding for longer periods of time. He was diagnosed at birth due to a family history. Caden lives a fairly normal life with the exception of always being aware of his body more than others. He is now able to tell us when he has a bleed before he loses range of motion. This means it is also before he has permanent damage to a joint from hemoarthrosis (when bleeding in the joint occurs).
We are blessed to have had no major medical problems in the past year. Currently, Caden needs to be treated on average 4 times per month with Factor VIII. Factor VIII is an intravenous medication that is made up from blood donations of more than 60,000 different people. The Factor VIII Caden uses is synthetically made. Caden has become more involved with his treatments. He calls them "poke pokes" and likes to dictate where he is going to be stuck. He then helps with the infusion process while keeping a smile on his face. He is an amazing boy!
Thank you,
The Alexander Family